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Rank: Member  Groups: Registered
Joined: 12/8/2009 Posts: 27
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Hi. So, I've failed with MTX and Leflunomide, so my consultant has started me on Cellcept today (Sitting with the box on the table contemplating taking my first one). So, anyone have experience of this one?
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Sorry, this is one of the few I haven't been on, but I hope it works well for you.
Love, Doreen xx
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Rank: Advanced Member
Groups: Registered
Joined: 12/7/2009
Posts: 176
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I haven't heard of that name either, but keep us informed how it goes? (I DO know the feeling of sitting there looking at pills!)
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Sorry, I haven`t heard of that one, let alone tried it, but I hope it works for you. Take care, Kathleen x
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Rank: Advanced Member
Groups: Registered
Joined: 2/26/2010
Posts: 271
Location: hampshire
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Sorry, its a new one on me too, good luck let usknow how you get on. I know exactly how you feel too about taking new tablets!
Heather xxx
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Rank: Member Groups: Registered
Joined: 12/8/2009 Posts: 27
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Thanks folks. On reading the literature that goes with it, it would appear to be a drug used mainly when people have transplants, so their bodies don't reject the new organ. 
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Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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Hi I don t know if you have seen this one, but it is a dmards and used in the treatment of RA. http://arthritis.about.c...s_Drug_Interactions.htm
I can t take mtx and leflunomide hasn t worked, currently taking pred. to keep me going now being considered for infliximab. Hopefully this works well for you, keep us posted. Julia x
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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I had not heard of this either, but like you I failed MTX and leflum and waiting to see the specialist to see what next. So really interested how you do. Good luck perhaps it could be one for me you never know. Rose 
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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hi
it sounds like azothyaprin type stuff, I have had that one- it is used in transplant rejection treatment too. A lot of the older patients when I was at Bath were on it. I took it with no issues but it didnt work on me either.
Much love
Jenni xhow to be a velvet bulldoser
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Rank: Member Groups: Registered
Joined: 12/8/2009 Posts: 27
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Thanks Jenni.
The Consultant is putting me forward for the biologics (anti-TNF?) but I have to be assessed first, so didn't want me on nothing pending the results of the assessment. In addition, I'm not keen to go on them until I have ruled out other options first - whether that's sensible or not I don't know. I'm currently on Sulphasalzine anyway, but am sure that affects my mood (very low at the moment) and my consultant also thinks I may be starting to have small stomach bleeds due to the Diclofenac, so she's keen to get me off that too. Am also on Tramadol. She's also concerned about the NSAIDs having an affect on my kidneys as I'm diabetic too, so kidneys are also affected by that condition, so makes them more vulnerable.
I'm pee'd off tbh as I thought MTX did wonders for me but the cysts on my fingers hurt like crazy (especially when handling my baby Osh), so had to come off. Other than the cysts I'd tollerated it well and was a new woman last winter - was even sledging at Christmas. Now I feel I'm on a downward spiral again, and am terrified of being the way I was 3 years ago, or my white blood cell count being so bad that I get an infection I can't fight, or contracting the Big C.
Does anyone actually know the risks involved in getting Cancer because we have RA and taking numerous immnusuppressants (sp?).
I hope my question doesn't upset people, but its at the forefront of my mind at the moment, especially when I look at my two beautiful boys and wonder if I'll see them grow up.
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi, were the cysts on your fingers caused by the mtx?
Just a thought....sometimes the drugs cause side effects, we stop them and then go back on them and don't get the same side effects. So I wonder , if your cysts go away now you have stopped the mtx, you may be able to go back on it at a later date and not get the same problem, if that makes sense?
Seems a shame you have had to stop it when you were doing so well on it.
As for the cancer question, I know anti-tnfs can put us at a higher risk of getting skin or lymph node cancer and we have to weigh up whether the risk is worth taking or not in order to get a better quality of life .
Love, Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 3/8/2010 Posts: 914
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Hi there,
What is your name? I feel for you just now as your are obviously low in spirits thinking the way you are. Cysts can come and go, I have one in my finger which came up recently. It was sore at first but now it's ok and doesn't bother me. I think it is getting smaller actually, they can disappear as quickly as they appear. Try to remain positive this will also help you, I know its hard at times like this. There is a drug out there which will help you. Your boys look really sweet, hopefully we can meet up soon. Lorna xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 561
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Hi just read your post i was on cellcept for a few months but had to come off it as i was having terrible migraines , this could be linked to my Lupus though so please dont worry , it is used for transplant patients too , i then was put on Rituximab last November , Good luck and let us know how your doing on it.
Sophie x
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